This project was part of PhD work undertaken by Dr Rasha Okasheh from University of Jordan at Sheffield Hallam University. Rasha was awarded her PhD in 2011. The project was adopted and supported by the CLAHRC SY COPD Theme.
The development and validation of TELER functional performance indicators for use in pulmonary rehabilitation for people with chronic obstructive pulmonary disease (COPD).
The central aim of pulmonary rehabilitation is to improve functioning. Functional performance of daily life activities is severely affected in people with COPD, and further deterioration may follow. Maintenance of the best possible level of functional performance following pulmonary rehabilitation is important to preserve the positive effects of treatment.
TELER, a new measure of functional performance for people with COPD was developed. TELER function indicators enable the clinicians and the patients to report on changes in the performance of a selection of daily life activities that are most affected by COPD and which can improve following pulmonary rehabilitation. TELER ‘function’ indicators record clinically significant improvements and deteriorations in functions such as going upstairs, walking and talking, uphill walking, showering, bending to do an activity, and a generic function indicator.
The process of developing the (TELER) function indicators for COPD consisted of five phases:
- Phase 1: A qualitative study - patient set goals of pulmonary rehabilitation: perspectives on functional activities of daily living
- Phase 2: A literature review - measurement of functioning in people with COPD: A review of existing outcome measures
- Phase 3: Mapping the themes generated from the qualitative study to the ICF, identifying the themes that describe functional status, and developing (TELER) function indicators
- Phase 4: Expert validation
- Phase 5: Testing of the indicators in pulmonary rehabilitation at BreathingSpace Rotherham
Le Roux, A A (1993) " TELER: The Concept" Physiotherapy, 79, 11, pp 755-58.
The use of TELER function indicators as a patient-reported outcome measure has been encouraged through the use of lay language. The indicators were developed by working with people attending the Breathe Easy support group in the South Yorkshire area. The indicators were calibrated by patients and experts in the field, and were approved by patients and clinicians. TELER indicators were then clinically tested in a pulmonary rehabilitation setting and proved to be a useful and responsive outcome measure of pulmonary rehabilitation. This has lead to their acceptance by patients and clinicians. The implementation of TELER function indicators as a self-management tool in the community will be explored in the future.
For more information please contact Angela Green