Implementation of an internet based system for monitoring Attention Deficit Hyperactivity Disorder (ADHD) in the community
Project Leads
Dr Val Harpinval.harpin@sch.nhs.uk
Dr Nevyne Chalhoubnevyne.chalhoub.sch.nhs.uk  
Other Project Staff/Students
Dr. Jack Parkerjack.parker@sheffield.ac.uk
Gill Walesgill.wales@sch.nhs.uk

Background
Attention-deficit hyperactivity disorder (ADHD) is a long-term condition and the symptoms are;

  • difficulty in maintaining concentration
  • impulsive behaviour caused by an inability to resist sudden urges
  • overactivity.

This can have a profound impact on the social, academic and family life from childhood to adult life.

Hyperactivity Disorder (ADHD) involves a complex assessment and treatment process which necessitates multiple stakeholders to work collaboratively. Indeed, the collection of impairment and symptom profiling that is carried out is paramount to the overall success of recommended interventions. This process often involves difficult and inefficient methods of data collection and often does not include the perspective of children under eleven.  

Aims

  • To implement the use of Health Tracker® with children/adolescents diagnosed with ADHD, their families, their teachers and the Health professionals involved in their care in CAMHS and Paediatric (Neurodisability) services in Sheffield.
  • To develop a database for routine use and the collection of long-term outcome data on a population based cohort of children and young people with ADHD. 
Project summary

The Health Tracker® (HT) project aims to implement the use of a computer database with children/adolescents diagnosed with ADHD. This includes their families, their teachers and the health professionals involved in their care in Child and Adolescent Mental Health (CAMHS) and Paediatric Neurodisability services in Sheffield. HT is an on-line multi-media (animated) suite of questionnaires and neuropsychological test games developed over four years at Great Ormond St and Guy’s St. Thomas NHS Trusts. The system has been designed to enable children (as young as five) and adolescents with a range of neurodevelopmental and neuropsychiatric disorders, parents, and teachers to input data through innovative computer-based electronic questionnaires.

 

As part of our evidence appraisal we are writing a systematic review; ‘The long-term outcomes of attention-deficit hyperactivity disorder interventions: A systematic review of randomised controlled trials.’ 


Anticipated outcomes

This project is will have explored the feasibility of using an innovative approach to monitoring ADHD whilst adhering to NICE guidelines and importantly, gaining the perspective of younger service users. The continued use of HT will also allow for further development of the database and will establish a research platform with a UK cohort of children/young people with ADHD.

Impact
The long-term use of Health Tracker™ may result in the on-going use of an electronic database to capture long-term patient data, such as symptom change and the impact of service interventions. This will enable clinicians to evaluate the effectiveness of service provision over the longer-term and provide a basis for future research projects to monitor the long-term effects of treatments used in the UK.

"This has exciting potential because if successful it could be developed into the first long term follow-up of the lives of children with ADHD in the UK," said Dr Nevyne Chalhoub, consultant child and adolescent psychiatrist at the Trust who is leading the project with consultant paediatrician Val Harpin.

"Before they go to see the consultant at the clinic, the doctor will already know how the child is doing."

CLAHRC Project Partners

Sheffield Children's Hospital NHS Foundation Trust

Other Partner Organisations

Great Ormond Street Hospital
Child and Adolescent Mental Health Service (CAMHS)
Paediatric Neurodisability Services (Ryegate)
Guys' & St Thomas' NHS Foundation Trust

Resources 
This project has previously been featured in The Star (April 2011) - view the article here.

ADHD - Project Update
Most recently updated May 2013

We are currently using Health Tracker® with 18 clinicians, 60+ patients, their parents and teachers across Paediatric Neurodisability & CAMHS services in Sheffield. This is enabling patients (as young as five), parents and teachers to complete questionnaires anywhere that has internet access. Patients and parents are reporting the ease of which the scales are accessible and the enjoyment the children have in completing animated questionnaires. Clinicians are reporting the benefits of having numerous scales completed before consultations which importantly, provide a current clinical picture. They are also reporting the benefits of displaying the data to parents alongside interventions. For example, it is possible to show changes in symptom profiling alongside medication.